2nd Megma Conference on Thalassaemia & other Haemoglobinopathies Amman, Jordan, 11–12 November 2016

摘要

Haemoglobin disorders are a group of hereditary anaemias, which without opti- mum care, are lethal often in early childhood. In developing economies optimum care is often not provided and the result is premature death of patients, in their teens or early adulthood, who have lived the life of a chronic invalid. Such a situ- ation is an additional burden to the health economy, since all resources offered to the patients are lost before the patient can achieve any quality of life and be able to work as an independent member of society. Optimum care on the other hand has been shown to allow for a long and productive life with patients being able to integrate and contribute to society. While developing patient care services, a pro- gramme of prevention is also essential since increasing numbers of affected births will soon overwhelm the resources required for optimum care.