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Being in limbo: The experience of critical illness in intensive care and beyond

机译:处于边缘状态:重症监护及其他重大疾病的经历

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Critical illness is a sudden traumatising lived experience that affects the sufferer and their family throwing them into a crisis situation [1,2]. It is disruptive and alienating. Critically ill patients emerging from unconsciousness often suffer from confusion that could be momentary or lasting. There is an increasing number of critical illness survivors in intensive care units (ICU)1 with numerous life changing ongoing physiological and psychological sequelae from critical illness and ICU hospitalization, with inadequate ongoing treatment for ICU survivors. Medicalised accounts of critical illness fail to recognise the significant impact on the person, their embodied sense of self and their ability to move on with their life after they leave hospital. The main purpose of this study was to explore the experience of critically ill patients in ICU and beyond. This phenomenological study describes what it was like for twelve people to experience critical illness in ICU and in the months after discharge. The finding was that critical illness is an acute life threatening event with long lasting effects which translate into temporal and biographical disruption, imprisonment by the ICU and its therapies and being trapped in an alien body that is plagued by uncertainty and long lasting conditions arising from the critical illness and the ICU therapies. Critical illness survivors are left in a state of limbo characterised by a struggle to reclaim their precritical illness ICU identity and uncertainty about their future. Hence an overarching theme of being in limbo under which three major themes of 1) disrupttion, 2) imprisonment and 3) being trapped were generated from the study.
机译:危重病是一种使人痛苦的生活经历,它影响着患者及其家人,使他们陷入危机[1,2]。这是破坏性的和疏远的。失去意识的重症患者通常会感到困惑,这种困惑可能是短暂的或持久的。重症监护病房(ICU)1中危重病幸存者的人数不断增加,重病和重症监护病房住院期间,大量生命改变了正在进行的生理和心理后遗症,而对重症监护病房幸存者的持续治疗不足。重大疾病的医疗账目未能认识到对人的重大影响,他们所体现的自我意识以及他们离开医院后继续生活的能力。这项研究的主要目的是探讨重症监护病房及其他重症患者的经验。这项现象学研究描述了十二个人在重症监护病房和出院后几个月内患上重病的感觉。研究发现,重症疾病是一种严重的威胁生命的事件,具有长期的影响,转化为时间和传记障碍,ICU及其疗法的监禁,并被困在异物中,该异物被不确定性和长期病情困扰重症疾病和ICU治疗。危重病幸存者处于处于困境的状态,其特征是努力争取重病前重症监护病房的身份和对未来的不确定性。因此,这项研究产生了一个总体主题,即“陷入困境”,这三个主要主题是:1)破坏,2)监禁和3)被困。

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