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Investigation of Relationship Between Social Capital and Quality of Life in Multiple Sclerosis Patients

机译:多发性硬化症患者社会资本与生活质量关系的调查

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Background: A large portion of existing medical research on Multiple Sclerosis patients focuses more on predicting medical variables (such as diagnosis, treatment) and individual variables such as the onset of disease, gender, etc., rather than broader socio-contextual factors. So that, here has yet been no study investigating factors such as social capital in Multiple Sclerosis patients. Aim: The purpose of this study is determining the relation between social capital and quality of life in Multiple Sclerosis patients who referred to Iran Multiple Sclerosis Society in 2012. Method: This cross-sectional study was conducted on 172 patients visiting Iran Multiple Sclerosis Society (Tehran) during 10 months via convenience samplings and face to face interviews. Tools for collecting data included World Bank’s social capital integrated questionnaire (SC-IQ) and Multiple Sclerosis Quality of Life (MSQOL) -54. Results: The average age of patients was 34/8±9/6. The analysis of the six dimensions of social capital questionnaire showed that the highest average score belonged to membership in groups and networks (63/3±15/3) and the lowest one was about trust and solidarity (44/3±13/7).The results of the regression model showed that there is a statistical significant and positive relation between social capital and quality of life (P > 0.0001). Conclusion: Since the present study has been conducted for the first time in this vulnerable subpopulation of patients, its results can provide invaluable information regarding the quality of life and at the same time present hypotheses about the contributing factors.
机译:背景:现有的有关多发性硬化症患者的医学研究中,有很大一部分侧重于预测医学变量(如诊断,治疗)和个体变量(如疾病的发作,性别等),而不是更广泛的社会背景因素。因此,目前尚无研究调查多发性硬化症患者的社会资本等因素。目的:本研究的目的是确定2012年转诊至伊朗多发性硬化症协会的多发性硬化症患者的社会资本与生活质量之间的关系。方法:本横断面研究是针对172名来访的伊朗多发性硬化症协会(德黑兰)在10个月内通过便利性抽样和面对面的访谈。收集数据的工具包括世界银行的社会资本综合问卷(SC-IQ)和多发性硬化症生活质量(MSQOL)-54。结果:患者的平均年龄为34/8±9/6。对社会资本问卷的六个维度的分析表明,平均得分最高的群体和网络成员(63/3±15/3),而得分最低的是信任和团结(44/3±13/7)。回归模型的结果表明,社会资本与生活质量之间存在统计显着正相关关系(P> 0.0001)。结论:由于本研究是首次针对这种弱势患者群体进行的,因此其结果可提供有关生活质量的宝贵信息,同时可提供有关影响因素的假设。

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