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Types of support to families of children with disabilities and their influence on family quality of life

机译:对残疾儿童家庭的支持类型及其对家庭生活质量的影响

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Different types of supports to families are among the aspects that contribute to family quality of life. This study aims to identify the types of supports that families of children with disabilities, users of early intervention services, consider relevant and how public administration influences the quality of this support. This is a qualitative study based on a critical social paradigm. Sixteen mothers and four fathers were interviewed and their contributions were analyzed using discourse analysis. The importance of family support and networks of parents of children with disabilities were highlighted. The role of the supports by health professionals is also crucial and, therefore, cuts in public health and social services have exacerbated the inequity in health. In practice this is highlighted in relation to those who can and the ones who cannot afford additional services. Other approaches in the support to families are suggested .
机译:对家庭的不同类型支持是有助于家庭生活质量的方面。这项研究旨在确定残疾儿童家庭,早期干预服务的使用者的支持类型,考虑相关性以及公共管理如何影响这种支持的质量。这是基于批判性社会范式的定性研究。采访了16位母亲和4位父亲,并使用话语分析法分析了他们的贡献。强调了家庭支持和残疾儿童父母网络的重要性。卫生专业人员的支持作用也至关重要,因此,削减公共卫生和社会服务加剧了卫生不公。实际上,这与那些有能力和无力负担额外服务的人有关。建议采取其他支持家庭的方法。

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