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Paternalism and autonomy: views of patients and providers in a transitional (post-communist) country

机译:家长式和自治:过渡国家(后共产主义)中患者和提供者的观点

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Background Patient autonomy is a fundamental, yet challenging, principle of professional medical ethics. The idea that individual patients should have the freedom to make choices about their lives, including medical matters, has become increasingly prominent in current literature. However, this has not always been the case, especially in communist countries where paternalistic attitudes have been interwoven into all relationships including medical ones. Patients’ expectations and the role of the doctor in the patient-physician relationship are changing. Croatia, as a transitional country, is currently undergoing this particular process. Methods Qualitative research was conducted by means of six focus group discussions held in the years 2012 and 2013 in Croatia. Focus groups were held separately with each of the following: first year and final (6 th ) year medical students, physicians engaged in medical ethics education, physicians practicing in a clinical hospital, family medicine residents and individuals representing patients with chronic disease. This research specifically addresses issues related to patient autonomy, in particular, the principles of truth telling, confidentiality, and informed consent. All focus group discussions were audio taped and then transcribed verbatim and systematized according to acknowledged qualitative analysis methods. Results?and discussion Patient autonomy is much more than a simple notion defined as the patient’s right to make treatment decisions independently. It has to be understood in context of the broader socio-cultural setting. At present, both patients and medical doctors in Croatia are increasingly appreciating the importance of promoting the principle of autonomy in medical decision-making. However, the current views of medical students, physicians and patients reveal inconsistencies. Conclusions Knowing how to respect the various facets of patients’ autonomy should be part of physician’s professional duties, and also be reflected in his or her core clinical competencies. For this reason greater importance should be dedicated to patient autonomy issues in medical education in Croatia.
机译:背景技术患者自主权是职业医学道德的基本但具有挑战性的原则。在当前的文献中,个体患者应该可以自由选择自己的生活(包括医疗问题)的想法已经越来越普遍。但是,情况并非总是如此,特别是在共产主义国家中,家长式的态度已经渗透到包括医疗关系在内的所有关系中。患者的期望以及医生在医患关系中的作用正在发生变化。克罗地亚作为一个过渡国家,目前正在经历这一特殊进程。方法定性研究是通过在2012年和2013年在克罗地亚举行的六次焦点小组讨论进行的。焦点小组与以下各项分别举行:一年级和期末(第六年)医学生,从事医学道德教育的医师,在临床医院执业的医师,家庭医学住院医师和代表患者的个人慢性病患者。这项研究专门针对与患者自治有关的问题,尤其是讲真话,保密和知情同意的原则。所有焦点小组的讨论都进行了录音,然后按照公认的定性分析方法逐字记录下来并进行系统化。结果与讨论患者自主权不仅仅是一个简单的概念,即患者有权独立做出治疗决策。必须在更广泛的社会文化背景下理解它。目前,克罗地亚的患者和医生都越来越意识到在医疗决策中促进自主原则的重要性。但是,医学生,医师和患者的当前观点揭示了不一致之处。结论知道如何尊重患者自主权的各个方面,应该是医师专业职责的一部分,并且还应反映在其核心临床能力中。因此,在克罗地亚的医学教育中应更加重视患者自治问题。

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