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Health-related quality of life and financial impact of caring for a child with Thalassaemia Major in the UK

机译:与健康相关的生活质量以及在英国照顾患有地中海贫血的儿童的财务影响

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摘要

Background  Thalassaemia Major (TM) is a serious condition characterized by life-long dependence on blood transfusions and chelation therapy. Our aim was to determine health-related quality of life (HRQOL) in children with TM living in the UK, and the impact of caring for a child receiving National Health Service treatment on family finances.
机译:背景地中海贫血(TM)是一种严重疾病,其特征是终身依赖输血和螯合疗法。我们的目标是确定居住在英国的TM儿童的健康相关生活质量(HRQOL),以及照料接受国民健康服务治疗的儿童对家庭财务的影响。

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