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The American English version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

机译:美国英语版本的青少年关节炎多维评估报告(JAMAR)

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摘要

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the American English language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 315 JIA patients (5.1% systemic, 31.1% oligoarticular, 34% RF negative polyarthritis, 29.8% other categories) and 98 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the American English version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
机译:《青少年关节炎多维评估报告》(JAMAR)是一项新的由父母/患者报告的结局指标,可以对青少年特发性关节炎(JIA)儿童的疾病状况进行全面评估。我们以美国英语报告了JAMAR父母和患者版本的跨文化适应和验证结果。在10名JIA父母和患者中对问卷的阅读理解进行了测试。每个参与中心被要求收集100例连续的JIA患者或六个月内见过的所有连续患者的人口统计学,临床数据和JAMAR,并对100例健康的孩子及其父母进行JAMAR的治疗。统计验证阶段探讨了JAMAR的描述性统计和心理计量问题:3个李克特假设,底线/天花板效应,内部一致性,克朗巴赫(Cronbach)α,量表之间的相关性,重测信度和构造效度(收敛效度和判别效度)。在这三个中心共纳入了315名JIA患者(全身性5.1%,少关节型31.1%,RF阴性多发性关节炎34%,其他类别29.8%)和98名健康儿童。 JAMAR组件从JIA患者中区分出健康状况良好的受试者。 JAMAR的所有组件都显示出良好的心理测验表现。总之,JAMAR的美国英语版本是评估JIA儿童的有效工具,适用于常规临床实践和临床研究。

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