首页> 美国卫生研究院文献>International Journal of Qualitative Studies on Health and Well-being >Picking up the pieces—Meanings of receiving home nursing care when being old and living with advanced cancer in a rural area
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Picking up the pieces—Meanings of receiving home nursing care when being old and living with advanced cancer in a rural area

机译:捡拾零碎的意思是在农村地区年老且患有晚期癌症时接受家庭护理

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摘要

Rural home nursing care is a neglected area in the research of palliative care offered to older cancer patients. Because access to specialized services is hampered by long distances and fragmented infrastructure, palliative care is often provided through standard home nursing services and delivered by general district nurses. This study aimed to illuminate the lived experience and to interpret the meaning of receiving home nursing care when being old and living with advanced cancer in a rural area in Norway. Narrative interviews were conducted with nine older persons, and a phenomenological hermeneutic approach was used to interpret the meaning of the lived experience. The analysis revealed three themes, each with subthemes: being content with what one gets, falling into place, and losing one's place. The phrase picking up the pieces was found useful to sum up the meaning of this lived experience. The three respective themes refer to how the pieces symbolize the remaining parts of life or available services in their environment, and how the older persons may see themselves as pieces or bricks in a puzzle. A strong place attachment (physical insideness, social insideness, and autobiographical insideness) is demonstrated by the informants in this study and suggests that the rural context may provide an advantageous healthcare environment. Its potential to be a source of comfort, security, and identity concurs with cancer patients’ strong desire for being seen as unique persons. The study shows that district nurses play an essential role in the provision of palliative care for older rural patients. However, the therapeutic value of being in one's familiar landscape seems to depend on how homecare nurses manage to locate it and use it in a more or less person-centred manner. Communication skills and attentiveness to psychosocial aspects of patient care stand out as important attributes for nursing in this context.
机译:农村家庭护理是向老年癌症患者提供姑息治疗研究中被忽视的领域。由于远距离和分散的基础设施阻碍了获得专业服务的机会,因此姑息治疗通常通过标准的家庭护理服务提供,并由一般的地区护士提供。这项研究旨在阐明生活经验,并解释在挪威农村地区年老且患有晚期癌症时接受家庭护理的意义。对九名老年人进行了叙述性访谈,并采用了现象学的诠释学方法来解释生活经历的意义。分析揭示了三个主题,每个主题都有子主题:对获得的东西感到满足,陷入困境并失去一席之地。人们发现,“捡起碎片”一词有助于总结这种经历的意义。这三个主题分别涉及碎片如何象征生活中剩余的部分或环境中可用的服务,以及老年人如何将自己视为难题中的碎片或砖头。这项研究的参与者证实了强烈的场所依恋感(身体内部,社会内部和自传内部),并表明农村环境可能提供有利的医疗环境。它具有成为舒适,安全和个性来源的潜力,这与癌症患者对被视为独特人物的强烈渴望相吻合。研究表明,地区护士在为老年农村患者提供姑息治疗方面发挥着至关重要的作用。但是,处于一个熟悉的环境中的治疗价值似乎取决于家庭护理护士如何定位它或以或多或少以人为本的方式使用它。在这种情况下,沟通技巧和对患者护理心理社会方面的关注是护理的重要属性。

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