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The Impact of Social Stigma for Children with Cleft Lip and/or Palate in Low-resource Areas: A Systematic Review

机译:社会偏见对资源贫乏地区唇裂和/或or裂儿童的影响:系统评价

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摘要

There are still children with cleft lip and/or palate (CLP) in low-resource areas who face social rejection. This stigma disadvantages children in education, employment, marriage, and community, and is exacerbated by barriers to care. Our study objective was to conduct a systematic review of the impact of social stigma of CLP for children in low-resource areas. We followed the Preferred Reporting Items for Systematic Reviews and Meta-analyses guidelines. A systematic search was conducted of 3 databases: Ovid Embase, Ovid Medline, and the African Journal Online from 2000 to October 5 2018. Common themes were identified using a grounded theory approach and quantitatively summarized. The Joanna Briggs Institute criteria were used to evaluate the risk-of-bias assessments. Four hundred seventy-seven articles were screened; 15 articles were included that focused on the impact of social stigma on CLP in low-resource areas. This was limited to English articles. The majority of studies originated in Nigeria or India. Themes were reported as follows: societal beliefs (n = 9; 60%), social impact (n = 7; 46%), marriage (n = 7; 46%), education (n = 6; 40%), employment (n = 5; 33%), and psychological distress (n = 3; 20%). Causes include the effect of “God’s will,” supernatural forces, evil spirits or ancestral spirits, exposure to an eclipse, black magic, or a contagion. Further, children with CLP may not be worth a full name or considered human and killed. Awareness of the impact of social stigma for children with CLP in low-resource areas generates support toward national education and awareness in low-resource areas.
机译:在资源贫乏地区,仍有儿童唇裂和/或late裂(CLP),他们面临着社会排斥。这种污名使儿童在教育,就业,婚姻和社区方面处于不利地位,并且因照顾障碍而加剧。我们的研究目标是对资源匮乏地区儿童受到CLP污名化的社会影响进行系统评价。我们遵循了系统评价和元分析的首选报告项目准则。从2000年到2018年10月5日对3个数据库进行了系统搜索:Ovid Embase,Ovid Medline和《 African Journal Online》。使用扎实的理论方法确定了共同的主题并进行了定量总结。乔安娜·布里格斯研究所(Joanna Briggs Institute)的标准用于评估偏见风险评估。筛选了477条文章;包括15篇文章,重点关注社会耻辱感对资源匮乏地区中电的影响。这仅限于英文文章。大多数研究起源于尼日利亚或印度。报告的主题如下:社会信仰(n = 9; 60%),社会影响(n = 7; 46%),婚姻(n = 7; 46%),教育(n = 6; 40%),就业( n = 5; 33%)和心理困扰(n = 3; 20%)。原因包括“上帝旨意”的影响,超自然力量,邪灵或祖先精神,日食,黑魔法或传染病的影响。此外,患有CLP的儿童可能不值全名或被认为是人类并被杀害。意识到社会耻辱感对资源贫乏地区的CLP儿童的影响为对资源贫乏地区的国民教育和意识提供了支持。

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