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The Role of Social Support in Adolescent/Young Adults Coping with Cancer Treatment

机译:社会支持在应对癌症治疗的青少年中的作用

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摘要

Adolescents/young-adult (AYA) cancer patients are a psychosocially at-risk group as they are often less well-studied than other age cancer cohorts. Therefore, they experience disparities in access to developmentally informed treatment. Social support has been determined as an important aspect of AYAs’ cancer experience, but additional research was needed to describe specific behaviors AYAs found helpful and to explore how AYAs seek opportunities for additional support. As part of a larger qualitative study, study aims were to determine how AYAs (ages 15–26) cope during cancer treatment and examine how social support interacts with individual AYA coping. Participants included 10 AYA cancer patients undergoing treatment (mean age = 18.9 years) and 10 parents (mean age = 45.6 years). Descriptively, participants scored within the normal to high range on measures of hope, depression/anxiety/stress, quality of life, and social support. Participants completed semi-structured, audio-recorded interviews that were transcribed and coded as generated. Qualitative analysis was guided by principles of grounded theory and utilized the constant comparative approach. Themes within social support groups included presence, distraction, positive attitude, and maintaining AYA autonomy, communication, and advocacy. Results suggest social supports provide additional coping resources for AYAs with cancer through supplementing individual coping strategies. Future directions/implications for intervention/treatment are discussed.
机译:青少年/青少年(AYA)癌症患者在心理上处于危险中,因为与其他年龄段的癌症患者相比,他们的研究水平通常较低。因此,他们在获得发育知情治疗的机会上存在差异。社会支持已被确定为AYAs癌症经验的重要方面,但是需要进一步的研究来描述AYAs认为有帮助的特定行为,并探索AYAs如何寻求额外支持的机会。作为一项较大的定性研究的一部分,研究目标是确定在癌症治疗期间AYA(15-26岁)如何应对,并研究社会支持如何与个人AYA应对相互作用。参加者包括10名接受治疗的AYA癌症患者(平均年龄= 18.9岁)和10名父母(平均年龄= 45.6岁)。描述性地,参与者在希望,抑郁/焦虑/压力,生活质量和社会支持等方面的得分在正常范围内。参与者完成了半结构化,音频记录的访谈,并进行了转录和编码。定性分析遵循扎根理论的原则,并采用了恒定的比较方法。社会支持团体中的主题包括在场,分散注意力,积极态度以及保持AYA自治,沟通和倡导。结果表明,社会支持通过补充个体应对策略,为患有癌症的AYA提供了额外的应对资源。讨论了干预/治疗的未来方向/含义。

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