A New Scale to Measure Family Members Perception of Community Health Care Services for Persons with Huntington Disease

摘要

Rationale, Aims, and ObjectivesHuntington Disease (HD) is a progressive genetic brain disease leading to disruptive cognitive, behavioral, and physical impairments. Persons with the condition and their caregivers need appropriate and accessible health care services to help them manage the disease adequately. The purpose of this study was to evaluate the psychometric properties of a new scale that measures family members' perception of community health care services (CHCS) for persons with HD.