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Social Networks the ‘Work’ and Work Force of Chronic Illness Self-Management: A Survey Analysis of Personal Communities

机译:社交网络慢性病自我管理的工作和劳动力:个人社区的调查分析

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摘要

Self-management support forms a central aspect of chronic Illness management nationally and globally. Evidence for the success of self-management support has mainly focussed on individually-centred outcomes of behavioural change. While it is recognised that social network members play an important role there is currently a gap in knowledge regarding who provides what type of support and under what circumstances. This is relevant for understanding the division of labour and the meeting of needs for those living with a long-term condition. We therefore took a network approach to explore self-management support conceptualising it as types of illness ‘work’ undertaken within peoples’ social networks. 300 people from deprived areas and with chronic illnesses took part in a survey conducted in 2010 in the North West of England. A concentric circles diagram was used as a research tool with which participants identified 2,544 network members who contributed to illness management. The results provide an articulation of how social network members are substantially involved in illness management. Whilst partners and close family make the highest contributions there is evidence of inputs from a wide range of relationships. Network member characteristics (type of relationship, proximity, frequency of contact) impact on the amount of illness work undertaken in peoples’ networks. In networks with ‘no partner’ other people tend to contribute more in the way of illness related work than in networks with a partner. This indicates a degree of substitutability between differently constituted networks, and that the level and type of input by different members of a network might change according to circumstances. A network perspective offers an opportunity to redress the balance of an exclusively individual focus on self-management because it addresses the broader set of contributions and resources available to people in need of chronic illness management and support.
机译:自我管理支持构成了国家和全球慢性病管理的重要方面。自我管理支持成功的证据主要集中在以行为为中心的以个人为中心的结果上。尽管人们认识到社交网络成员扮演着重要的角色,但是在由谁提供何种类型的支持以及在何种情况下提供知识方面,目前仍存在差距。这对于了解分工和满足长期居住者的需求非常重要。因此,我们采用一种网络方法来探索自我管理支持,将其概念化为人们在社交网络中进行的疾病“工作”类型。来自贫困地区的300名患有慢性病的人参加了2010年在英格兰西北部进行的一项调查。同心圆图被用作研究工具,参与者可以识别出2544名对疾病管理做出贡献的网络成员。结果阐明了社交网络成员如何实质上参与疾病管理。尽管合伙人和近亲做出了最大的贡献,但有证据表明,各种关系中都有投入。网络成员的特征(关系类型,亲近度,联系频率)会影响人们网络中进行的疾病工作量。在没有伴侣的网络中,与与伴侣的网络相比,其他人在疾病相关工作方面的贡献更大。这表明结构不同的网络之间的可替代性程度,并且网络中不同成员的输入级别和类型可能会根据情况而变化。从网络角度来看,提供了一个机会,可以纠正个人对自我管理的关注,因为它可以解决需要慢性病管理和支持的人们的广泛贡献和资源。

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