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Rural Family Perspectives and Experiences with Early Infant Hearing Detection and Intervention: A Qualitative Study

机译:农村家庭对婴幼儿听力检测和干预的观点和经验:定性研究

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摘要

Infant hearing loss has the potential to cause significant communication impairment. Timely diagnosis and intervention is essential to preventing permanent deficits. Many infants from rural regions are delayed in diagnosis and treatment of hearing loss. The purpose of this study is to characterize the barriers in timely infant hearing healthcare for rural families following newborn newborn hearing screening (NHS) testing. Using stratified purposeful sampling, the study design involved semi-structured phone interviews with parents/guardians of children who failed NHS testing in the Appalachian region of Kentucky between 2012 and 2014 to describe their experiences with early hearing detection and intervention program. Thematic qualitative analysis was performed on interview transcripts to identify common recurring themes in content. 40 parents/guardians participated in the study and consisted primarily of mothers. Demographic data revealed limited educational levels of the participants and 70 % had state-funded insurance coverage. Participants reported barriers in timely infant hearing healthcare that included poor communication of hearing screening results, difficulty in obtaining outpatient testing, inconsistencies in healthcare information from primary care providers, lack of local resources, insurance-related healthcare delays, and conflict with family and work responsibilities. Most participants expressed a great desire to obtain timely hearing healthcare for their children and expressed a willingness to use resources such as telemedicine to obtain that care. There are multiple barriers to timely rural infant hearing healthcare. Minimizing misinformation and improving access to care are priorities to prevent delayed diagnosis and treatment of hearing loss.
机译:婴儿听力损失有可能导致严重的沟通障碍。及时诊断和干预对于预防永久性缺陷至关重要。农村地区的许多婴儿在听力损失的诊断和治疗上都受到了延误。这项研究的目的是确定新生儿听力筛查(NHS)测试后农村家庭及时进行婴儿听力保健的障碍。使用分层的有目的抽样,研究设计包括对2012年至2014年在肯塔基州阿巴拉契亚地区未通过NHS测试的孩子的父母/监护人进行半结构化电话采访,以描述他们的早期听力检测和干预计划的经历。对采访笔录进行了主题定性分析,以识别内容中常见的重复主题。 40名父母/监护人参加了研究,主要由母亲组成。人口统计数据显示,参与者的受教育程度有限,并且70%的人拥有国家资助的保险。参加者报告了婴儿及时听力保健的障碍,包括听力筛查结果沟通不畅,门诊检测困难,初级保健提供者的保健信息不一致,缺乏本地资源,与保险有关的医疗延误以及与家庭和工作责任的冲突。大多数参与者对为他们的孩子及时获得听力保健表示了极大的愿望,并表示愿意使用远程医疗等资源来获得这种保健。及时农村婴儿听力保健存在多种障碍。尽量减少错误信息和改善就医机会是防止延迟诊断和治疗听力损失的优先事项。

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