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IT’S LIKE A CYBER SECURITY BLANKET: THE UTILITY OF REMOTE MONITORING IN FAMILY DEMENTIA CARE

机译:就像网络安全毯一样:家庭痴呆症患者远程监控的实用性

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摘要

The prevalence and considerable challenges of dementia raise concerns as to the sustainability of the United States’ reliance on families to provide care to cognitively impaired relatives in the community. Experts have proposed that various technologies could substitute for or supplement family caregiving. The objective of the current study was to examine whether one of these technological approaches, remote activity monitoring (RAM), was perceived as feasible and useful for family caregivers of persons with ADRD living at home. As part of a larger, 5-year evaluation of the efficacy of RAM, the current study utilized a parallel convergent mixed methods design (QUAL + QUAN). Thirty family caregivers of persons with dementia who have used RAM for at least 6 months were included. Empirical and open-ended data on perceptions of system acceptability and utility were examined at 6, 12, and 18 months following enrollment; correlations, thematic analysis, and a case oriented merged analysis were utilized. Overall empirical ratings of RAM utility and acceptability were moderate at 6 months. Qualitative themes identified included fit, adjustment period, benefits, and drawbacks/recommendations. The case oriented merged analysis suggested considerable patterns of adaptation to RAM over time. The mixed methods findings imply that caregivers perceived RAM as moderately useful, but also that positive adaptation to the technology took place over time. For systems such as RAM to operate effectively in home settings, human guidance and support is necessary for adaptation to take place and allow such technology to successfully support persons with dementia and their family caregivers.
机译:痴呆症的患病率和巨大挑战使人们对美国依靠家庭为社区中有认知障碍的亲戚提供照料的可持续性感到担忧。专家们提出,各种技术可以替代或补充家庭照料。本研究的目的是研究是否将其中一种技术方法,即远程活动监视(RAM),认为对在家中患有ADRD的人的家庭护理人员是可行和有用的。作为对RAM效果进行的为期5年的大型评估的一部分,当前的研究采用了并行收敛混合方法设计(QUAL + QUAN)。包括30名使用RAM至少6个月的痴呆症患者的家庭护理人员。在注册后的6、12和18个月检查了关于系统可接受性和实用性的经验和开放式数据;相关性,主题分析和面向案例的合并分析被利用。 RAM实用性和可接受性的总体经验分级为6个月。确定的定性主题包括适合度,调整期,收益和缺点/建议。面向案例的合并分析表明,随着时间的流逝,有相当大的适应RAM的模式。混合方法的发现暗示护理人员认为RAM适度有用,但随着时间的流逝,人们对该技术也有了积极的适应。为了使诸如RAM之类的系统在家庭环境中有效运行,必须进行人工指导和支持,以使适应发生,并使此类技术成功地支持患有痴呆症的人及其家属。

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