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Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions

机译:接近儿科姑息肿瘤学研究的第三个十年:历史进展和未来方向

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摘要

Paediatric palliative care (PPC) endeavours to alleviate the suffering and improve the quality of life of children with serious illnesses and their families. In the past two decades since WHO defined PPC and called for its inclusion in paediatric oncology care, rigorous investigation has provided important insights. For example, the first decade of research focused on end-of-life experiences of the child and the family, underscoring the high prevalence of symptom burden, the barriers to parent–provider concordance with regards to prognosis, as well as the need for bereavement supports. The second decade expanded PPC oncology investigation to include the entire cancer continuum and the voices of patients. Other studies identified the need for support of parents, siblings, and racial and ethnic minority groups. Promising interventions designed to improve outcomes were tested in randomised clinical trials. Future research will build on these findings and pose novel questions about how to continue to reduce the burdens of paediatric cancer.
机译:小儿姑息治疗(PPC)致力于减轻重症儿童及其家庭的痛苦并改善其生活质量。自世界卫生组织定义PPC并呼吁将其纳入儿科肿瘤护理以来的过去二十年中,严格的研究提供了重要的见解。例如,第一个十年的研究集中在儿童和家庭的临终经历上,强调了症状负担的高患病率,父母与提供者之间在预后方面达成一致的障碍以及丧亲的必要性。支持。第二个十年将PPC肿瘤学研究范围扩大到整个癌症连续体和患者的声音。其他研究表明需要父母,兄弟姐妹以及种族和少数民族群体的支持。在随机临床试验中测试了旨在改善结果的有希望的干预措施。未来的研究将基于这些发现,并提出有关如何继续减轻小儿癌症负担的新问题。

著录项

  • 期刊名称 other
  • 作者

    Abby R Rosenberg; Joanne Wolfe;

  • 作者单位
  • 年(卷),期 -1(1),1
  • 年度 -1
  • 页码 56–67
  • 总页数 24
  • 原文格式 PDF
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  • 入库时间 2022-08-21 11:09:19

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