Thirty years of National Institute on Disability Independent Living and Rehabilitation Research Traumatic Brain Injury Model System Centers research – an update

摘要

The Traumatic Brain Injury Model System Centers (TBIMSCs) Program was established by the National Institute on Disability, Independent Living and Rehabilitation Research in 1987, with the goal of conducting research to improve the care and outcomes for individuals with moderate-to-severe traumatic brain injury (TBI). This article provides an update on TBIMSCs Research Program activities since 2010 when a similar article was published. It includes: (1) discussion of TBIMSCs Program management and infrastructure; (2) detail on the management, data quality, access, use and knowledge translation of the TBIMSCs National Database, with over 16,000 participants with follow-up out to 25 years post-injury to date; (3) an overview of the TBIMSCs site-specific studies and collaborative module research; (4) highlights of several collaborative initiatives between the TBIMSCs and other federal, advocacy, and research stakeholders; (5) an overview of the vast knowledge translation occurring through the TBIMSC Program; and (6) discussion of issues that impact on the data collection methods for and contents of the TBIMSCs National Database. On the occasion of the 30^th anniversary of the TBIMSCs Program, this article highlights many of the accomplishments of this well-established, multi-center TBI research consortium.