Available evidence indicates that grandparents can play a crucial role in supporting and caring for disabled grandchildren and the entire family unit, yet the lived experiences of grandparenting in this context has received scant attention in research, policy or practice. This study explored grandparents’ perspectives on their role and intergenerational relationships within the family as they age. Narrative interviews were conducted with 20 grandparents (aged 60–85 years), who had a grandchild with a range of disabilities (aged 4–19 years). Key themes emerging include: ‘family keeping’ (support, protection), ‘concern for the future’ (impact of ageing, worry), ‘changing times’ (stepping back, growing up), ‘grandparenting’ (being there, pride, adjustments, negotiation), ‘knowledge and advice’ (acquiring new knowledge, professional and personal experience). The results of this study give a voice to a previously under-researched group and help inform key debates, such as how extending working life policies can impact on families with disabled children.
展开▼
