Quality improvement of clinic flow for complex genetic conditions: Using Ehlers–Danlos syndrome as a model

摘要

BackgroundGenetic providers face the challenge of having adequate time to conduct a comprehensive evaluation. Hypermobile Ehlers–Danlos (hEDS) syndrome has a complex array of symptoms. An initial visit can involve approximately 60–80 min and an additional 45 min for the check‐in and checkout process. We propose a model to improve clinic flow and patient satisfaction by using: (a) pre‐appointment questionnaire (b) disease information sheet outlining basic management and (c) itinerary detailing the visit.