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Clergy Views on a Good Versus a Poor Death: Ministry to the Terminally Ill

机译:神职人员对好的和差的死亡的看法:事工到绝症

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摘要

>Background: Clergy are often important sources of guidance for patients and family members making medical decisions at the end-of-life (EOL). Previous research revealed spiritual support by religious communities led to more aggressive care at the EOL, particularly among minority patients. Understanding this phenomenon is important to help address disparities in EOL care.>Objective: The study objective was to explore and describe clergy perspectives regarding “good” versus “poor” death within the participant's spiritual tradition.>Methods: This was a qualitative, descriptive study. Community clergy from various spiritual backgrounds, geographical locations within the United States, and races/ethnicities were recruited. Participants included 35 clergy who participated in one-on-one interviews (N = 14) and two focus groups (N = 21). Semistructured interviews explored clergy viewpoints on factors related to a “good death.” Principles of grounded theory were used to identify a final set of themes and subthemes.>Results: A good death was characterized by wholeness and certainty and emphasized being in relationship with God. Conversely, a “poor death” was characterized by separation, doubt, and isolation. Clergy identified four primary determinants of good versus poor death: dignity, preparedness, physical suffering, and community. Participants expressed appreciation for contextual factors that affect the death experience; some described a “middle death,” or one that integrates both positive and negative elements. Location of death was not viewed as a significant contributing factor.>Conclusions: Understanding clergy perspectives regarding quality of death can provide important insights to help improve EOL care, particularly for patients highly engaged with faith communities. These findings can inform initiatives to foster productive relationships between clergy, clinicians, and congregants and reduce health disparities.
机译:>背景:神职人员通常是为患者和家属在临终时做出医疗决定的重要指导来源。先前的研究表明,宗教团体的精神支持导致EOL尤其是少数族裔患者获得了更积极的护理。了解这一现象对于解决EOL护理方面的差异很重要。>目的:研究目的是探讨和描述参与者精神传统中关于“好”与“差”死亡的神职人员观点。>方法:这是定性的描述性研究。招募了来自不同精神背景,美国境内地理位置以及种族/民族的社区神职人员。参加者包括35名神职人员,他们参加了一对一的访谈(N = 14)和两个焦点小组(N = 21)。半结构化访谈探讨了神职人员对与“良好死亡”相关的因素的看法。扎根理论的原则被用来确定最终的主题和子主题。>结果:好的死亡的特征是完整性和确定性,并强调与上帝的关系。相反,“可怜的死亡”的特征是分离,怀疑和孤立。神职人员确定了好与坏死亡的四个主要决定因素:尊严,准备,身体痛苦和社区。与会者对影响死亡经历的背景因素表示赞赏;有些人描述了“中间死亡”,或者说是将积极和消极因素融为一体的。 >结论:了解神职人员关于死亡质量的观点可以提供重要见解,以帮助改善EOL护理,特别是对于高度信仰信仰社区的患者。这些发现可以为促进神职人员,临床医生和同胞之间的生产性关系和减少健康差异提供信息。

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