Caring Connection: Developing an Internet Resource for Family Caregiversof Children with Cancer

摘要

This poster will describe the development of a family-focused, web-based resource, the “Caring Connection”, designed to provide individualized clinical information, patient-centered information resources, and access to online family-provider and family-to-family communication for caregivers of children with cancer.Data from structured interviews with family caregivers and healthcare providers describe their current Internet use and information needs. Website prototype development and user testing provide additional insights that are informing the ongoing design of the “Caring Connection” website.