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Listening through narratives: using a narrative approach when discussing fertility preservation options with young cancer patients

机译:聆听叙述:与年轻的癌症患者讨论生育力保留方案时使用叙述方法

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摘要

Despite clinical practice guideline recommendations mandating that fertility preservation be discussed with young cancer patients, many providers fail to initiate such discussions with adolescents. Researchers and clinicians often focus on system-level changes to improve access to fertility preservation for adolescents and young adults in Canada. However, little of the available information considers the way in which health care providers approach those discussions.Research has shown that, even when fertility preservation options are broached with adolescents, survivors often report dissatisfaction with those conversations, thus raising additional concerns about their content and quality. Here, we consider how a narrative approach—and the Frank narrative typology in particular—could improve the quality of such conversations by helping providers to more accurately and thoughtfully respond to the needs of adolescent patients when discussing the possibility of fertility preservation. Based on findings from a qualitative research project, we provide concrete suggestions for how to more sensitively approach fertility preservation conversations with male adolescent cancer patients and survivors.
机译:尽管临床实践指南建议强制与年轻癌症患者讨论生育力保留问题,但许多提供者仍未与青少年进行此类讨论。研究人员和临床医生通常将重点放在系统级别的更改上,以改善加拿大青少年和年轻人的生育能力。然而,几乎没有可用的信息考虑到医疗服务提供者进行这些讨论的方式。研究表明,即使在青春期提倡生育力保留选项时,幸存者也经常对这些对话表示不满,从而引起对其内容和内容的更多担忧质量。在这里,我们考虑一种叙事方法(尤其是弗兰克叙事类型)如何通过帮助提供者在讨论保留生育能力时更准确,周到地响应青春期患者的需求来提高此类谈话的质量。基于定性研究项目的发现,我们为如何更敏感地与男性青少年癌症患者和幸存者进行生育力保护对话提供具体建议。

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