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Improving the Management of Psoriatic Arthritis and Axial Spondyloarthritis: Roundtable Discussions with Healthcare Professionals and Patients

机译:改善银屑病关节炎和轴突性脊柱关节炎的管理:与医疗保健专业人员和患者的圆桌讨论

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摘要

Psoriatic arthritis (PsA) and axial spondyloarthritis (AxSpA) are both chronic, inflammatory conditions that result in a substantial burden of disease and reduced quality of life for patients. Patient involvement in developing optimal disease management strategies, including defining appropriate goals, therapies, and treatment options, as well as in setting policy priorities and agendas, is key. A working group of patient organization representatives and rheumatologists explored what patients consider to be unmet needs, important treatment gaps, and future priorities in PsA and AxSpA management. Reducing pain and fatigue, and improving physical and social functioning and work productivity were identified as important treatment goals for patients. Although the major treatment target for both PsA and AxSpA is remission, with low/minimal disease activity an alternative target for patients with established or long-standing disease, the meaning of remission from the patient’s perspective needs to be explored further as it may differ considerably from the physician’s perspective. Key recommendations from the working group to tackle unmet needs included reducing time to diagnosis, increasing patient and physician disease awareness, focusing on patients’ priorities for treatment goals, and improving patient–physician communication. By addressing these key action points moving forward, the hope is that outcomes will continue to improve for patients with PsA and AxSpA.
机译:银屑病关节炎(PsA)和轴突性脊柱关节炎(AxSpA)都是慢性炎症性疾病,会导致严重的疾病负担并降低患者的生活质量。病人参与制定最佳疾病管理策略(包括定义适当的目标,疗法和治疗方案)以及制定政策重点和议程至关重要。由患者组织代表和风湿病医生组成的工作组探讨了患者认为未满足的需求,重要的治疗差距以及PsA和AxSpA管理的未来优先事项。减轻疼痛和疲劳,改善身体和社交功能以及工作效率被确定为患者的重要治疗目标。尽管PsA和AxSpA的主要治疗目标是缓解,但疾病活动率低/微弱是已患病或长期疾病的患者的另一种治疗目标,但从患者角度出发,缓解的含义有待进一步探讨,因为它可能存在很大差异从医师的角度来看。工作组为满足未满足的需求而提出的重要建议包括:缩短诊断时间,提高患者和医师对疾病的认识,关注患者对治疗目标的优先考虑以及改善医患沟通。通过解决这些关键的行动要点,希望是对PsA和AxSpA患者的结局将继续改善。

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