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Socioeconomic burden of hereditary angioedema: results from the hereditary angioedema burden of illness study in Europe

机译：遗传性血管性水肿的社会经济负担：欧洲疾病遗传性血管性水肿负担研究的结果

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BackgroundHereditary angioedema (HAE) due to C1 inhibitor deficiency is a rare but serious and potentially life-threatening disease marked by spontaneous, recurrent attacks of swelling. The study objective was to characterize direct and indirect resource utilization associated with HAE from the patient perspective in Europe.

机译：背景由于缺乏C1抑制剂而导致的遗传性血管性水肿（HAE）是一种罕见的，但很严重且可能危及生命的疾病，其特征是自发性，反复发作的肿胀。研究目的是从欧洲患者的角度描述与HAE相关的直接和间接资源利用。

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期刊名称 Orphanet Journal of Rare Diseases
作者
Emel Aygören-Pürsün; Anette Bygum; Kathleen Beusterien; Emily Hautamaki; Zlatko Sisic; Suzanne Wait; Henrik B Boysen; Teresa Caballero;
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作者单位

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年(卷),期 2014(9),-1
年度 2014
页码 99
总页数 9
原文格式 PDF
正文语种
中图分类医学史;
关键词
Hereditary angioedema Burden of illness Resource utilization Productivity;

机译：遗传性血管性水肿;疾病负担;资源利用;生产力;

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专利

1. Socioeconomic burden of hereditary angioedema: results from the hereditary angioedema burden of illness study in Europe [J] . Emel Ayg?ren-Pürsün, Anette Bygum, Kathleen Beusterien, Orphanet journal of rare diseases . 2014,第S2期

机译：遗传性血管性水肿的社会经济负担：来自欧洲疾病遗传性血管性水肿负担研究的结果
2. The humanistic burden of hereditary angioedema: Results from the Burden of Illness Study in Europe [J] . CaballeroT., Ayg?ren-PürsünE., BygumA., Allergy and asthma proceedings . 2014,第1期

机译：遗传性血管性水肿的人文负担：欧洲疾病负担研究的结果
3. The hereditary angioedema burden of illness study in Europe (HAE-BOIS-Europe): background and methodology [J] . Anette Bygum, Emel Ayg?ren-Pürsün, Teresa Caballero, BMC Dermatology . 2012,第1期

机译：欧洲遗传性血管性水肿疾病负担研究（HAE-BOIS-欧洲）：背景和方法
4. Helminths in the Treatment of Hereditary Angioedema: A Theoretical Model in Support of a Novel Therapeutic Option [C] . Donna L. Beales International Conference on Bioinformatics, Computational Biology, Genomics and Chemoinformatics . 2010

机译：蠕虫治疗遗传性血统血统：一种基于新型治疗选择的理论模型
5. Screening of natural products for their effect on kallikrein-kinin system: Potential implications in the treatment of hereditary angioedema. [D] . Madkhali, Hassan Abdu. 2015

机译：筛选天然产物对激肽释放酶激肽系统的影响：遗传性血管性水肿治疗的潜在影响。
6. The hereditary angioedema burden of illness study in Europe (HAE-BOIS-Europe): background and methodology [O] . Anette Bygum, Emel Aygören-Pürsün, Teresa Caballero, 2012

机译：欧洲遗传性血管性水肿疾病负担研究（HAE-BOIS-欧洲）：背景和方法
7. Socioeconomic burden of hereditary angioedema : results from the hereditary angioedema burden of illness study in Europe [O] . Aygören-Pürsün, Emel, Bygum, Anette, Beusterien, Kathleen, 2014

机译：遗传性血管性水肿的社会经济负担：欧洲疾病性遗传性血管性水肿负担研究的结果

Socioeconomic burden of hereditary angioedema: results from the hereditary angioedema burden of illness study in Europe

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