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An examination of advanced cancer caregivers’ support provided by staff interventions at hospices in Argentina

机译:在阿根廷医院的工作人员干预下对高级癌症护理人员的支持进行了检查

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摘要

The aim of the study was to describe the type of intervention provided by hospice staff in order to address the pragmatic, psycho-social, and spiritual needs of home-caregivers for patients in the last stage of cancer. The qualitative inquiry was carried out in real life contexts. The explicit demands that caregivers (n = 40) identified in the first interviews were: (1) helping to organize the care of the patient at home; (2) unspecific demands, with unclear or unrealistic purposes (e.g., curative treatment or a miracle expected to occur); (3) specific resources (such as formal caregivers to replace them), and (4) a place to leave the patient either for a temporary period (a respite for the family) or in a permanent way. The main issues discussed were the delays in the patients’ referral to the hospice and the lack of time for long-term interventions; explicit focus is placed on the care by addressing the spiritual and emotional needs of caregivers, unlike in hospital settings where professionals avoid discussions of spiritual needs due to a lack of time, inadequate training and poor understanding of spirituality; hospices’ interventions are based upon an ethos similar to the movement’s original Christian spirit with emphasis placed on qualities of care such as love, charity, and compassion besides expertise and end-of-life competence, all while tolerating a sense of abandonment by health and social security systems following the patient’s referral.
机译:该研究的目的是描述临终关怀人员提供的干预类型,以解决癌症晚期患者家庭护理人员的务实,心理-社会和精神需求。定性探究是在现实生活中进行的。初次访谈中对护理人员(n = 40)的明确要求是:(1)帮助组织患者在家中的护理; (2)没有明确要求或目的不明确的要求(例如预期会发生的治愈性治疗或奇迹); (3)特定资源(例如代替他们的正式照料者),以及(4)暂时(永久休养家庭)或永久离开患者的地方。讨论的主要问题是患者转诊至临终关怀医院的延误以及缺乏长期干预措施的时间。通过满足护理人员的精神和情感需求,将重点明确地放在护理上,这与医院环境中的专业人员不同,因为缺乏时间,培训不足和对灵性的了解,专业人员避免讨论精神需求;收容所的干预是基于类似于该运动原始基督教精神的精神,除了专业知识和报废能力之外,重点在于关爱质量,例如爱,慈善和同情心,同时还要容忍被健康和社会抛弃的感觉。病人转诊后的社会保障体系。

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