炎症性肠病病人感知病耻感与生活质量的相关性研究

摘要

Objective:To investigate the perceived stigma in patients with inflammatory bowel disease (IBD) and its relationship with patients’quality of life (QOL).Methods:A total of 110 patients with IBD hospitalized in four grade 3 hospitals in Jiangsu Province were involved in this study.The self-designed general information questionnaire,the Perceived Stigma Scale in IBD (PSS-IBD) and the Chinese version of inflammatory bowel disease questionnaire (IBDQ) were used to investigate the perceived stigma level,QOL, and the correlation of the patients with IBD.Results:The score of PPS-IBD was (65.66 ± 36.70) points ;40% of patients had moderate to severe perceived stigma.The score of IBDQ was(155.08 ± 31.89) points.Except the scores of the family dimension and the general symptom dimension had no correlation,the other dimension of stigma had negative correlation with the total score and the scores of each dimensions of QOL (r＝ －0.51 to －0.19,P＜0.05 or P＜0.01).Regression analysis showed that the QOL of patients could be predicted by disease status,stigma perception from the leadership,and communication frequency with medical staff (standardized re-gression coefficient was －0.62 to －0.19).Conclusion:The QOL of patients with IBD was closely related with the perceived stigma, which should be paid more attention.%[目的]探讨炎症性肠病病人感知病耻感水平及其与生活质量的相关性. [方法]采用横断面调查的方法,选取江苏省4所三级甲等医院住院的炎症性肠病病人110例,采用一般情况调查表、炎症性肠病病人感知病耻感量表(PSS-IBD) 、炎症性肠病病人生活质量量表(IBDQ)进行调查,分析炎症性肠病病人感知病耻感水平、生活质量水平及其相关性. [结果]炎症性肠病病人 PSS-IBD得分为(65 .66±36 .70)分,40% 病人存在中度、重度的感知病耻感;IBDQ得分为(155 .08±31 .89)分,除家人维度得分与全身症状维度得分无相关性外,感知病耻感其余维度得分与生活质量总分及各维度均呈负相关(r值为－0.51～ －0 .19,P＜0.05或 P＜0 .01) .回归分析显示疾病状态、从领导处感知病耻感、与医护人员沟通频繁程度可预测病人的生活质量(标准化回归系数为 －0.62～ －0.19).[结论]炎症性肠病病人生活质量与感知病耻感水平密切相关,其感知病耻感问题应引起临床医护人员的关注.