Promoting Patient Voices on the Internet: Ethical considerations about web-based dissemination of research on patient narratives

摘要

Web-based promotion of qualitative research has a potential to reform traditional scientific dissemination, as well as it challenges ethical norms of research participation and anonymity. In this poster, we discuss ethical considerations of web-based dissemination of qualitative research on patient narratives through video recordings. Including subjective un-anonymized patient stories in research dissemination to inform and support, might have benefits for the field of science, patients, health professionals and the general population. However, ethical norms and guidelines for anonymity needs to be considered with care when promoting patient voices on the Internet.