Supports Treatment Compliance by Sharing Happiness and Being Friends: A Case Study in 'Sahabat Anak Kanker' Community in Indonesia

摘要

Background: treatment compliance of Acute Lymphoblastic Leukemia (ALL) important to improve morbidity and one of keys to successful treatment in children with ALL. Sahabat Anak Kanker Malang is a non-state community of self-help group cancer engaged to build positive perceptions of patients and families about the fight against cancer in Indonesia. Objective: by elaborating Friedmans role theory as a theoretical framework, this research is aimed to explore the role concept self-help group cancer childhood to support compliance care of parent in ALL children. Method: this study was conducted by case study in qualitative design with 25 participants from volunteers, health workers and the community. Data conducted in Sahabat Anak Kanker Malang Community, and surroundings area by participatory observation, in-depth interview and focus group discussion. Data were analyzed with data reduction, display, conclusion, verification and assisted by open code software 4.0. Result: This research found that this community offered a major program to share happiness with cancer children and being friends for them, motivators as well as facilitators for medication compliance, develop fun hospital atmosphere for children and gain networking to support patients and parents. Conclusion: Although they face difficulties when interacting with health worker technically in the treatment room, the activities undertaken by this community get wide positive responses as an alternative program and complete maintenance activities that cannot be fully done by the hospital.