Enhancing Public Input and Transparency in the National Institutes of Health Research Priority-Setting Process. A Report by the NIH Director's Council of Public Representatives (COPR)

摘要

The National Institutes of Health (NIH) Directors Council of Public Representatives (COPR) was established by the NIH Director in 1998 in response to a need identified in the Institute of Medicine (IoM) report, Scientific Opportunities and Public Needs: Improving Priority Setting and Public Input at the National Institutes of Health. The COPR was established in recognition of the need for a forum through which the NIH leadership could interact with representatives of the public. To review the state of public input and participation at the NIH, COPR designated a Public Input and Participation Work Group (PIPWG) to gather information. In April 2003, PIPWG identified the two areas that would be the primary focus of this report: public input and transparency. PIPWG also found it necessary to define the term public. At its most encompassing, the public is everyone outside the NIH. COPR believes that the NIH, in its worthy goal of improving quality of life for all Americans, should facilitate the flow of information to and from all members of the public who are interested in a particular subject area.