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Developmental changes in the roles of patients and families in type 1 diabetes management

机译:患者和家庭在 1 型糖尿病管理中角色的发展变化

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Developmentally-tailored diabetes self-care education and support are integral parts of contemporary multidisciplinary T1D care. The patient with T1D must have the support of the family and the diabetes team to maintain the rigors of diabetes management, but the specific roles of patients and families with regard to daily diabetes tasks change considerably throughout the developmental span of early childhood, middle childhood/school-age years, and adolescence. This review provides a framework of key normative developmental issues for each of these developmental stages. Within this context, ideal family diabetes management is reviewed within each developmental stage and anticipated challenges that can arise during these stages and that can adversely impact diabetes management are presented. This paper also summarizes empirical evidence for specific intervention and care strategies to support optimal diabetes management across these stages in order to maximize opportunities for a successful transfer of diabetes management tasks from parents to maturing youth. Finally, the review provides an emphasis on approaches to promote family teamwork and adolescent diabetes self-care adherence as well as opportunities to use novel technology platforms as a means to support optimal diabetes management.
机译:针对发展量身定制的糖尿病自我护理教育和支持是当代多学科 T1D 护理不可或缺的一部分。T1D 患者必须得到家庭和糖尿病团队的支持,以保持糖尿病管理的严格性,但患者和家庭在日常糖尿病任务方面的具体角色在儿童早期、儿童中期/学龄期和青春期的整个发育过程中发生了很大变化。本综述为每个发展阶段的关键规范性发展问题提供了一个框架。在此背景下,回顾了每个发育阶段的理想家庭糖尿病管理,并提出了在这些阶段可能出现并可能对糖尿病管理产生不利影响的预期挑战。本文还总结了具体干预和护理策略的经验证据,以支持这些阶段的最佳糖尿病管理,以便最大限度地将糖尿病管理任务从父母成功转移到成熟的青少年。最后,该综述强调了促进家庭团队合作和青少年糖尿病自我护理依从性的方法,以及使用新技术平台作为支持最佳糖尿病管理手段的机会。

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