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Parental Resilience and Quality of Life in Children with Developmental Disabilities in Indonesia: The Role of Protective Factors

机译:印度尼西亚发育障碍儿童的父母复原力和生活质量:保护因素的作用

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摘要

The severity of physical, cognitive, and social-emotional challenges in children with developmental disabilities significantly impacts their quality of life. One of the most consistent factors that play a role in the quality of life for children with a developmental disability is parental resilience. Previous research has identified several factors that influence parental resilience. However, this research is limited to Western countries. Little is known about the role of these factors in relation to parental resilience in Asian societies. The present study investigates the longitudinal associations between potential protective factors (fewer stressors, adaptive appraisal, social support, and compensating experiences) and parental resilience and quality of life in Indonesian families with children with developmental disabilities. A three-wave longitudinal design was used to test the indirect link between protective factors, family resilience, and quality of life. Wave one was composed of 497 families, out of which 224 and 209 families participated in waves two (1-year follow-up) and three (2-year follow-up), respectively. The Inventory of Family Protective Factors (IFPP), the Parenting Resilience Elements and the Quality of Life of children scales were used to assess the main concepts. The longitudinal connections between protective variables, parental resilience, and children's quality of life were tested using cross-lagged path analysis. The results showed that all protective factors predicted parental resilience, and parental resilience predicted the quality of life of children with developmental disabilities.
机译:发育障碍儿童的身体、认知和社会情感挑战的严重程度会显着影响他们的生活质量。影响发育障碍儿童生活质量的最一致因素之一是父母的复原力。先前的研究已经确定了影响父母复原力的几个因素。然而,这项研究仅限于西方国家。对于这些因素在亚洲社会中与父母复原力的关系,人们知之甚少。本研究调查了潜在的保护因素(较少的压力源、适应性评估、社会支持和补偿经历)与有发育障碍儿童的印度尼西亚家庭的父母复原力和生活质量之间的纵向关联。采用三波纵向设计来测试保护因素、家庭复原力和生活质量之间的间接联系。第一波由497个家庭组成,其中分别有224个和209个家庭参加了第二波(1年随访)和第三波(2年随访)。采用家庭保护因素量表(IFPP)、育儿复原力要素量表和儿童生活质量量表对主要概念进行评估。使用交叉滞后路径分析检验了保护变量、父母复原力和儿童生活质量之间的纵向联系。结果表明,所有保护因素均预测了父母的生存质量,而父母的生存适应力则预测了发育障碍儿童的生活质量。

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