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Understanding ‘risk’ in families living with mixed blood-borne viral infection status: The doing and undoing of ‘difference’

机译:了解混合血源性病毒感染状态家庭的“风险”:“差异”的发生和消除

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摘要

‘Risk’ has long been at the centre of expert and popular perceptions of transmissible and stigmatised blood-borne viral infections, such as HIV and viral hepatitis. There is a substantial body of research on transmission risk among couples with mixed viral infection status (serodiscordance). But we know very little about how families affected by HIV and viral hepatitis engage with understandings of infectiousness and how these shape family relationships in different ways. Guided by cultural theories of risk that build on Mary Douglas’ work, we draw on qualitative interviews to explore the ‘performativity’ of risk in serodiscordant families in Australia. We show how the ‘doing’ of risk could be constitutive of difference, which unsettled the family connection or deepened existing fault lines. Conversely, the ‘undoing’ of risk enabled the preservation of the family bond by rejecting difference and reframing risk as an external threat to the family in the form of stigma. We conclude that risk in the context of serodiscordant families had relational implications far beyond viral transmission and consider what our findings might mean for service provision and health promotion campaigns related to blood-borne viruses.
机译:长期以来,“风险”一直是专家和大众对可传播和污名化的血源性病毒感染(如艾滋病毒和病毒性肝炎)的看法的核心。有大量关于混合病毒感染状态(血清不一致)夫妇的传播风险的研究。但是,我们对受艾滋病毒和病毒性肝炎影响的家庭如何参与对传染性的理解以及这些如何以不同的方式塑造家庭关系知之甚少。在玛丽·道格拉斯(Mary Douglas)工作的基础上,我们以风险文化理论为指导,利用定性访谈来探索澳大利亚血清不一致家庭中风险的“表现性”。我们展示了风险的“行为”如何构成差异,这扰乱了家庭关系或加深了现有的断层线。相反,风险的“消除”通过拒绝差异和以耻辱的形式将风险重新定义为对家庭的外部威胁,从而得以维护家庭纽带。我们得出的结论是,血清不一致家庭的风险具有远远超出病毒传播的关系影响,并考虑我们的研究结果对与血源性病毒相关的服务提供和健康促进活动可能意味着什么。

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