Meeting families where they are: Text-based support in parent to parent programs

摘要

Background Social support can be an important buffer to stress to parents when their child has a disability. Parent to parent (P2P) is an evidence-based peer support program for parents of children with disabilities, where support is provided over the telephone. However, younger parents may prefer electronic communication platforms. Methods This paper reports on the results of an online survey of P2P stakeholders regarding: How text-based support is being used in P2P programs and whether text-based support is perceived as providing benefits to parents of children with disabilities. A 13-item survey was developed, which included 10 opportunities to provide Likert, nominal, ordinal and dichotomous responses, as well as three open-ended questions. Thirty-one P2P coordinators participated. Results The majority of participants reported that text-based support was provided regularly in support relationships, most frequently to parents between 25 and 34. The most common platforms used included email and text messages, private Facebook groups and the Facebook Messenger application. Participants indicated that most P2P programs did not have a written policy or guidelines regarding text-based support. Qualitative themes of best practice, connection, (mis)understanding, convenience, preferences and privacy are also presented. Conclusion Because parents of young children are frequently referred to P2P programs for information and support, it is important the P2P program adapts to the preferences of a new generation while continuing to provide reliable and effective support. (word count: 225).