Female Spouses' Perceptions of the Sexual Relationship with Stroke-Affected Partners

摘要

Sexuality is known to be important for couples' function after stroke. Although maintaining a satisfying sexual life has a positive influence on self-esteem and predicts overall quality of life, there has been little focus on healthy spouses' sexuality after stroke. The purpose of this Norwegian study is to provide an interpretation of the influence of stroke on female spouses' sexual relationship with their disabled partner after stroke. Sexuality is understood as an integral and inseparable part of a person's personality and a basic aspect of being human. A phenomenological hermeneutic approach inspired by Merleau-Ponty was chosen. Narrative interviews were conducted with twelve female spouses who had lived 3-25 years with their stroke ridden partner. The data analysis resulted in four main themes: Married to a "stranger"; The shift from partner to caregiver; Sexuality wrapped in silence; A void to live with. These themes highlighted the influence of the residual disabilities, emotional experiences and overall life changes on spouses' sexual life with their partner. Spouses experienced their partner as changed and sometimes as having become a stranger. The former mutual relationship was turned into a caregiver/care receiver relationship. Spouses felt they were confronted with emotional turmoil that interfered with their sexual life. Communication problems added to couples' difficulties and some spouses decided to end the frustrating sexual relationship with their partner. Although the spouses managed to find different coping strategies, the loss of a fulfilling sexual life added to their burden. Health professionals did not address sexuality. Specialized training programs are needed to increase professional awareness and competency regarding sexuality after stroke.