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Evaluation of a national surveillance unit.

机译:评估国家监督部门。

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AIM: The Australian Paediatric Surveillance Unit (APSU) facilitates national active surveillance of uncommon childhood conditions. This study assessed whether it fulfilled its objectives and satisfied criteria established by the Centers for Disease Control and Prevention (CDC) for evaluating surveillance systems. METHODS: Anonymous questionnaires were sent to users of the system, individual studies were reviewed, and data were collected from independent sources. RESULTS: Seven hundred and sixty six clinicians, 48 investigators, and 15 public health professionals responded to the questionnaires. Clinicians reported that the APSU was useful, 33% saying information provided by the APSU informed or changed their clinical practice. Most (88%) reported that completing monthly report cards was not a burden. Impact on policy development was limited by suboptimal dissemination of information to public health professionals. Flexibility and timeliness were limited by design. Estimated sensitivity of APSU studies ranged from 92% (congenital rubella) to 31% (drowningear drowning). Positive predictive value of notified cases was over 70% for most studies. CONCLUSION: The APSU fulfils most of its objectives and meets CDC criteria salient to these. Ways in which the APSU could be improved have been identified, as have methodological challenges and limitations in applying CDC guidelines to this type of unit.
机译:目的:澳大利亚儿科监测部门(APSU)促进全国对少见的儿童状况进行积极的监测。这项研究评估了其是否达到了疾病控制与预防中心(CDC)制定的评估监视系统的目标和标准。方法:向系统用户发送匿名调查表,对个人研究进行回顾,并从独立来源收集数据。结果:766位临床医生,48位调查员和15位公共卫生专业人员对问卷进行了回答。临床医生报告说,APSU是有用的,有33%的人说APSU提供的信息有助于或改变了他们的临床实践。大多数(88%)报告说完成月度报告卡不是负担。信息向公共卫生专业人员的传播不够理想,限制了对政策制定的影响。灵活性和及时性受到设计的限制。 APSU研究的估计敏感性范围为92%(先天性风疹)至31%(溺水/溺水)。对于大多数研究,通报病例的阳性预测价值超过70%。结论:APSU达到了其大部分目标,并符合针对这些目标的CDC标准。已经确定了可以改进APSU的方法,以及在将CDC指南应用于此类单位时遇到的方法学挑战和局限性。

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