...
机译:措施,加强的价值的影响观察在罕见疾病的调查:Fabry结果调查(FOS)提交
Division of Clinical and Metabolic Genetics, Hospital for Sick Children, University of Toronto, 555;
Medical Genetics Service, HCPA, Department of Genetics, Porto Alegre, Rio Grande do Sul, Brazil;
Division of Nephrology and Dialysis, Department of Medicine III, Medical University of ViennaHeart Hospital, University College London, London, United KingdomDepartment of Pediatrics, Germans Trias i Pujol Hospital, Autonomous University of BarcelonaShire Human Genetic Therapies, Danderyd, SwedenDepartment of Pediatrics, University Medical Center, J.G. University Mainz, Mainz, Germany;
patient registry; Fabry Disease; agalsidase alfaRare DiseasesRegistriesInformation sourcecompletenessData capture;
机译:Ear symptoms in children with Fabry disease: data from the Fabry Outcome Survey.
机译:The Suprasellar Meningioma Patient-Reported Outcome Survey: a disease-specific patient-reported outcome measure for resection of suprasellar meningioma
机译:Assessing trends in medical expenditures and measuring the impact of health-related quality of life on medical expenditures for U.S. adults with diabetes associated chronic kidney disease using 2002-2016 medical expenditure panel survey data
机译:认真贯彻344号令 加大行业监管力度—常州市危险化学品运输安全现状及其对策To Implement the No.344 Orderand Enhance the Supervision—Survey Reporton the Present Safety Situationof Dangerous Chemicals Transport in Changzhou City
机译:患有idurulfase治疗和未治疗的II型粘多糖贮积症患者的生存率:来自Hunter Outcome survey(HOs)的数据