Genetic counselling in parents of children with congenital heart disease significantly improves knowledge about causation and enhances psychosocial functioning

摘要

Background: One of the key questions asked by parents of children with congenital heart disease (CHD) is 'why' and 'how did this happen?'. Receiving more information in response to these questions is therefore important to parents. This study sought to assess the efficacy of individualised genetic counselling sessions in improving knowledge of causation and psychosocial functioning in parents of children with CHD.