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E-Infrastructures and the divergent assetization of public health data: Expectations, uncertainties, and asymmetries

机译:电子基础设施和公共卫生数据的分歧数据:期望,不确定性和不对称

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In this article, we examine some of the expectations, frictions and uncertainties involved with the assetization of de-identified NHS patient data by (primary care) research services in UK. Pledges to Electronic Health Record (EHR) data-driven research attempt to reconfigure public health data as an asset for realizing multiple values across healthcare, research and finance. We introduce the concept of ‘asymmetrical divergence’ in public health data assetization to study the various practices of configuring and using this data, both as a continuously generated resource to be extracted and as an asset to be circulated in the knowledge economy. As data assetization and exploitations grow bigger and more diverse, the capitalization of these datasets may constitute EHR data-driven research in healthcare as an attractive technoscientific activity, but one limited to those actors with specific sociotechnical resources in place to fully exploit them at the required scale.
机译:在本文中,我们审查了在英国(初级保健)研究服务的排除鉴定的NHS患者数据所涉及的一些期望,摩擦和不确定性。 向电子健康记录(EHR)数据驱动的研究试图将公共卫生数据重新配置为实现跨医疗保健,研究和金融的多重价值的资产。 我们在公共卫生数据资产中介绍了“不对称分歧”的概念,以研究配置和使用此数据的各种实践,无论是要持续生成的资源,还要作为在知识经济中传播的资产。 随着数据的资金化和利用变得更大,更多样化,这些数据集的资本化可能构成医疗保健中的EHR数据驱动的研究,作为具有吸引力的技术活动,但是一个有专门的社会科学资源的行为者,以便以所需的方式充分利用它们 规模。

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