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From engaging publics to engaging knowledges: Enacting 'appropriateness' in the Austrian biobank infrastructure

机译:从吸引公众到吸引知识:在奥地利生物库基础设施中实行“适当性”

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摘要

While there is consensus on the essential importance of public engagement in further developments of biobanking, the related investigation of public views predominantly focused on the concerns expressed by the publics, and the concrete formats of public engagement, without delving into the ways these concerns are constituted. In this article, we summarize recent research on public engagement in order to describe the constitution of respective concerns as "engagement of knowledges." By shifting the focus of analysis from "publics" to "knowledges," we draw attention to the interaction dynamic through which citizens embed the new knowledge they receive during expert interactions into the stock of knowledge they already possess. Analyzing our recent investigation of public views on biobanking in the form of citizen-expert panels in the Austrian infrastructure of biobanks (BBMRI.at), we trace this dynamic through citizens' recurrent concerns that the research and consent practices related to biobanking should be "appropriate."
机译:尽管公众参与对于生物银行的进一步发展至关重要,已经达成共识,但是对公众观点的相关调查主要集中在公众表达的关注点和公众参与的具体形式上,而没有研究这些关注点的构成方式。在本文中,我们总结了最近对公众参与的研究,以将各个关注点的构成描述为“知识的参与”。通过将分析的重点从“公众”转移到“知识”,我们得出注意互动动态,公民通过这种互动将在专家互动中获得的新知识嵌入他们已经拥有的知识储备中。分析我们最近以奥地利生物银行基础设施中的公民专家小组(BBMRI.at)形式对公众对生物银行的看法进行的调查,我们通过市民反复关注与生物银行有关的研究和同意做法应为“生物银行”来追踪这种动态。 “适当。”

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