Integrating music therapy into pediatric palliative care

摘要

Palliative care programs in pediatric settings exist to support patients and families when a life-threateningnillness results in an uncertain prognosis. Consistent and open communication within the healthcare team,nas well as between the team and families, is vital for providing optimal care while simultaneously instillingna sense of choice and control in patients and family members. Parents value a trusting relationship withnmedical staff in order to be a partner in the child’s care. Music therapy is seen as an integral componentnwithin the scope of multi-disciplinary services offered to provide patient- and family-centered care,nencourage positive coping, and enhance quality of life. Grounded in a palliative care philosophy, a sensenof hope is always encouraged despite the circumstances, although various ‘lenses’ may be offered tonhelp reframe hope. Board-certified music therapists provide creative opportunities for expression andnassist in pain management using non-pharmacological modalities. Through literature review and casenexamples, this study aims to share how music therapy interventions, such as songwriting, help to makenpositive memories and provide support during treatment and at end-of-life. The benefits of integratingnmusic therapy interventions into pediatric palliative care services in order to encourage bonding andnlegacy building from a parent or sibling perspective will be highlighted. Aspects of developing both anmusic therapy and palliative care program in a pediatric setting will be discussed. Opportunities toneducate healthcare providers on utilization of services will also be shared.