Information Connections: Linking Libraries and Communities

摘要

Information Connections is a Web site for parents of children with developmental disabilities and chronic diseases. It is a collaborative effort led by Nalini Mahajan, Marianjoy Medical Library Director, and Webmaster, Mary Keen, MD, Director of the Marianjoy Pediatric Program, with input from the Pediatric Team and parents of children affected by developmental disabilities. The project began with a simple idea of assisting parents and caregivers to obtain reliable and updated health information at the point of need for making informed health care decisions. The goal was to develop a better understanding of the health information needs of the parents of children with developmental disabilities and chronic conditions, and build a dedicated Web site to provide up-to-date and reliable information with a focus on autism, cerebral palsy (CP), attention-deficit/hyperactivity disorder (ADHD), Down syndrome, and traumatic brain injury (TBI).