Introduction: Healthcare data is generated about the patient, for patient care. However, data is treated as the property of the healthcare organization. This leads to siloed data, poor continuity of care, and low patient engagement. Advocates for patient data ownership (PDO) argue that informed patients are more knowledgeable about and able to manage their health. Additionally, PDO embodies many patient-centered care (PCC) ideals: empowerment, education, and involvement. Libraries can play an important role in advocating for PDO, and educating patients on proper information literacy and management. Libraries have long been serving as advocates and educational institutions for many information literacy topics. Health information literacy education is crucial to PDO so that patients can effectively understand, use, and manage their data. The overall goal of the larger research project is to understand PDO. The research question which constitutes the first phase of this project is: What are the current data practices of healthcare organizations regarding patient ownership? Methods: A multi-phase case study approach is used to meet the research objective. The first phase analyzes organizational documentation from a major healthcare organization to understand the official policies on patient data. Documentation includes public statements about patient data (e.g., news articles), internal records (e.g., data privacy statement), and public records (e.g., governmental regulation) that impact the organization's data practices. These documents are analyzed for any direct or indirect impact they have on patients owning their data. Results: Will be presented. Discussion: A focus on library roles in patient data ownership.
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