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A Multiple Stakeholder Perspective for Evaluating Community-Based Dementia Care

机译:一种评估基于群落的痴呆护理的多种利益相关者的视角

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Abstract For holistic interventions and research on dementia, it is fundamental to understand care experiences from the perspectives of carers, care recipients, and care professionals. While research on care dyads and triads have highlighted the effects of communication and interactional aspects on care relationships, there is a lack of knowledge on how individual-contextual and relational factors shape the provision and receipt of care in terms of decision-making processes, resource allocation, and expectations of care outcomes. Thus, this paper sheds light on (i) how carers negotiate care provision with other important life domains such as employment, household/family roles and conflicts, as well as their own health problems, life goals, values, and aspirations for ageing; (ii) how older adults with dementia perceive support and those who provide it; (iii) the structural constraints faced by care professionals in delivering a team-based mode of dementia care; and, taken together, (iv) how community-based dementia care is impeded by barriers at the individual, relational, and institutional levels. Findings were derived from semi-structured interviews and observational data from fieldwork conducted with 20 persons with dementia (median age = 82), 20 of their carers (median age = 60), and 4 professional care providers. All respondents were clients and staff of a multidisciplinary and community-based dementia care system in Singapore. Our analysis indicates the impact of dementia care is strongly mediated by the interplay between institutional/familial contexts of care provision and the various ‘orientations’ to cognitive impairment and seeking support, which we characterised as ‘denial/acceptance’, ‘obligated’, ‘overprotective’, and ‘precariously vulnerable’.
机译:摘要对于痴呆症的整体干预和研究,了解护理人员,护理获得者和护理专业人员的角度的基础知识。虽然Care Dyads和Triads的研究突出了沟通和互动方面对护理关系的影响,但缺乏关于个人情境和关系因素如何在决策过程,资源方面塑造和收到护理的知识分配和护理结果的期望。因此,本文揭示了(i)卡斯人如何与其他重要的生活领域进行护理,如就业,家庭/家庭角色和冲突,以及他们自己的健康问题,生命目标,价值观和渴望的渴望; (ii)老年人如何具有痴呆症的疑虑支持和提供的人; (iii)护理专业人员面临的结构约束,在提供基于团队的痴呆症的痴呆症模式中;并且,(iv)(iv)如何​​通过个人,关系和制度水平的障碍阻碍基于社区的痴呆症。调查结果来自于由20名痴呆症(中位年龄= 82),其中20名的护理人员(中位年龄= 60)和4名专业护理提供者进行的校外采访和观测数据。所有受访者都是新加坡的客户和基于社区痴呆护理系统的客户和工作人员。我们的分析表明,痴呆症护理的影响受到监护权障碍和各种“方向”与认知障碍和寻求支持的各种“方向”之间的相互作用强烈调解,我们被认为是“拒绝/接受”,“有义务”,“过度保护',''岌岌可危脆弱'。

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