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The Breaking Point: Family Dementia Caregivers’ Recognition of the Need to Intervene

机译:突破点:家庭痴呆护理人员的认识需要干预

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摘要

Abstract Family dementia caregivers are an under-recognized and valuable geriatric workforce whose services have broad implications for health care systems. Family dementia caregivers may experience uncertainty, loss of role identity, involuntary role assumption, or undesirable life transitions. Subsequent unintentional mistreatment or abuse of their family care recipient may occur. Approximately 50% of caregivers admit to some form of mistreatment of their loved one who lives with dementia. Using Selder’s (1989) life transition theory, this qualitative study explored family members’ life transition process toward their new role identities as family dementia caregivers to better understand the personal and historical contexts of caregiving. Semi-structured interviews were conducted with 10 participants to answer the questions: How does one acquire the role of primary family dementia caregiver?” and “How do personal and historical contexts inform the family dementia caregiver role?” Richness of data drove our sample size. Epistemological integrity ensured trustworthiness and rigor. A modification of Colaizzi’s (1978) analytic method was used for interpretative phenomenological analysis. The emergent themes uncovered by participants’ statements included: “It’s my turn”, “the breaking point”, and “a fine line” with the subtheme “balancing dignity and safety”. Participants described their introspective journeys toward a changed reality as family dementia caregivers. Our findings suggested the need for early recognition and vigilance to prevent the exploitation and mistreatment of those with dementia. Rural agriculture-based family caregivers in our study described unique and challenging characteristics. Further research is needed to explore the implications of these contextual nuances for rural agriculture-based family dementia caregivers.
机译:摘要家庭痴呆护理人员是一个公认和有价值的老年劳动力,其服务对医疗保健系统具有广泛影响。家庭痴呆护理人员可能会经历不确定性,角色丧失身份,不自主的角色假设或不期望的生命过渡。可能会发生随后的无意虐待或滥用他们的家庭护理接受者。大约50%的护理人员承认某种形式的虐待他们所爱的人,他们生活在痴呆症。使用Selder(1989)的生活过渡理论,这种定性研究探讨了家庭成员的生命过渡过程,因为家庭痴呆照顾者更好地了解护理的个人和历史背景。半结构化访谈是用10名参与者进行回答的问题:如何获得原始家庭痴呆症的作用?“和“个人和历史背景如何通知家庭痴呆症的照顾者?”数据的丰富性推动了我们的样本大小。认识论完整性确保了可靠性和严谨性。 Colaizzi(1978)分析方法的修改用于解释性现象学分析。参与者的陈述未发现的紧急主题包括:“轮到轮”,“破碎点”,以及“平衡尊严和安全”的“精细”。作为家庭痴呆护理人员,参与者描述了他们对改变现实的内省旅程。我们的研究结果表明需要早期承认和警惕,以防止对具有痴呆症的剥削和虐待这些人。我们研究中的农村农业科家庭护理人员描述了独特挑战的特点。需要进一步的研究来探讨这些语境细微法对农村农业的家庭痴呆护理人员的影响。

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