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The Need to See the World: Outings and Meaningful Engagement Among Assisted Living Residents With Dementia

机译:需要看世界:患有痴呆症的辅助生活居民之间的郊游和有意义的参与

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Abstract Meaningful engagement is a promising avenue for enhancing the lives of persons with dementia. Yet, engagement can prove challenging across care settings. Here, we report on our ongoing 5-year NIA-funded study (R01AG062310) aimed at identifying best practices for promoting meaningful engagement opportunities among assisted living residents with dementia. Guided by grounded theory method, the study involves multiple modes of qualitative data collection, including: participant observation; resident record review; and in-depth interviews with residents (when possible), assisted living staff, residents’ family and friends, volunteers, and others involved in residents’ daily lives. We present analysis of data collected in 4 diverse care settings studied in-depth over a one-year period and focus on “outings” or instances when residents leave the assisted living setting. Findings show the variable nature, content, and frequency of outings and demonstrate the advantages, disadvantages, and challenges associated with taking persons living with dementia out of their living environments. Outings represent an opportunity “to get out,” “see the world,” and “not be stuck inside.” Yet, outings are not universally successful and sometimes create frustration, distress or confusion. Multiple factors intersect to influence residents’ opportunities to participate in and derive benefit from outings, including residents’ cognitive and physical function, and personal preferences, and formal and informal care partners’ knowledge, attitudes, behaviors, and resources. Care setting practices and policies, resources, size and location, and community connections also shape opportunities for and experiences with outings among residents living with dementia. We discuss the implications of our findings for research, policy, and practice.
机译:抽象的有意义的参与是一个有希望的大道,用于增强痴呆症的人的生活。然而,参与可以在护理环境中证明挑战。在这里,我们报告了我们正在进行的5年的NIA资助的研究(R01AG062310),旨在确定促进患有痴呆症的辅助生活居民之间有意义的参与机会的最佳实践。通过接地理论方法引导,该研究涉及多种定性数据收集模式,包括:参与者观察;居民记录评论;与居民(尽可能何时),协助生活员工,居民的家人和朋友,志愿者和其他参与居民日常生活的人的访谈。我们在一年期间研究了4种不同护理环境中收集的数据的分析,并关注居民留下辅助生活环境时的“郊游”或情况。调查结果显示出郊游的可变性质,内容和频率,并展示与痴呆症生活在生活环境中的人员相关的优缺点和挑战。郊游代表一个机会“走出来”,“看到世界”,“不要被困在里面”。然而,郊游并不普遍成功,有时会产生沮丧,痛苦或混乱。多种因素相交,影响居民的参与和源于郊游的机会,包括居民的认知和物理职能,以及个人喜好以及正式和非正式的护理合作伙伴的知识,态度,行为和资源。关心设置实践和政策,资源,大小和地点以及社区联系也塑造了痴呆症居民的郊游的机会和经验。我们讨论了我们对研究,政策和实践的调查结果的影响。

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