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首页> 外文期刊>Asian Pacific Journal of Cancer Prevention >Parents' and Health-Care Providers' Perspectives on Side-Effects of Childhood Cancer Treatment in Indonesia
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Parents' and Health-Care Providers' Perspectives on Side-Effects of Childhood Cancer Treatment in Indonesia

机译:父母和医疗保健提供者对印度尼西亚儿童癌症治疗副作用的观点

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Background: Efficacy of childhood cancer treatment in low-income countries may be impacted by parents' and health-care providers' perspectives on chemotherapy-related side-effects. This study explores prevalence and severity of side-effects in childhood cancer, and compares health beliefs about side-effects between parents and health-care providers, and between nurses and doctors in Indonesia. Materials and Methods: Semi-structured questionnaires were filled in by 40 parents and 207 health-care providers in an academic hospital. Results: Parents exporessed a desire to receive more information about side-effects (98%) and worried about this aspect of treatment (90%), although side-effects were less severe than expected (66%). The most frequent was behavior alteration (98%) and the most severe was hair loss. Only 26% of parents consulted doctors about side-effects. More parents, compared to health-care providers, believed that medicines work better when side-effects are more severe (p0.001), and accepted severe side-effects (p=0.021). More health-care providers, compared to parents, believed that chemotherapy can be stopped or the dosage altered when there are side-effects (p=0.011). More nurses, compared to doctors, stated that side-effects were unbearable (p=0.004) and made them doubt efficacy of treatment (p0.001). Conclusions: Behavior alteration is the most frequent and hair loss the most severe side-effect. Apparent discrepancies in health beliefs about side-effects exist between parents and health-care providers. A sustainable parental education program about side-effects is recommended. Health-care providers need to update and improve their knowledge and communication skills in order to give appropriate information. Suchmeasures may improve outcome of childhood cancer treatment in low-income countries, where adherence to therapy is a major issue.
机译:背景:低收入国家儿童癌症治疗的疗效可能受到父母和医疗保健提供者对化疗相关的副作用的观点。本研究探讨了儿童癌症的副作用患病率和严重程度,并比较了父母和医疗保健提供者之间的副作用以及印度尼西亚护士与医生之间的健康信念。材料和方法:半结构化问卷由40名父母和207家医疗保健提供者填写。结果:父母们愿意接受有关副作用的更多信息(98%)并担心治疗方面的更多信息(90%),尽管副作用比预期的严重严重(66%)。最常见的是行为改变(98%),最严重的是脱发。只有26%的父母咨询了关于副作用的医生。与医疗保健提供者相比,更多的父母认为,当副作用更严重(P <0.001)并接受严重的副作用时,药物更好地工作(P = 0.021)。与父母相比,更多的医疗保健提供者认为,当存在副作用时,可以停止化疗或随更改变(P = 0.011)。与医生相比,更多护士表示,副作用是难以忍受的(p = 0.004)并使它们怀疑治疗的功效(p <0.001)。结论:行为改变是最常见和脱发最严重的副作用。父母和医疗保健提供者之间存在关于副作用的健康信念的明显差异。建议有关于副作用的可持续父母教育计划。保健提供者需要更新和提高他们的知识和沟通技巧,以提供适当的信息。这种索赔可以改善低收入国家儿童癌症治疗的结果,依从治疗是一个主要问题。

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