SwedeAmp—the Swedish Amputation and Prosthetics Registry 8-year data on 5762 patients with lower limb amputation show sex differences in amputation level and in patient-reported outcome

摘要

Background and purpose — For want of national guide-lines for lower limb amputation (LLA) the quality regis-try SwedeAmp was started in 2011 to increase knowledgearound LLA and prosthetic rehabilitation. We now presentdata from the first 8 years of registration.Patients and methods — We present descriptive datafrom the first 8 years (2011–2018) of registration. Patient-reported outcome was collected at baseline and at follow-up12 and 24 months after surgery for patients with prostheticsupply and included generic (EQ-5D-5L) and amputee-spe-cific (e.g., LCI-5L and Prosthetic Use Score) measures. Sexdifferences were investigated.Results — As at December 31, 2018, 5,762 patients,7,776 amputations, 2,658 prosthetic supplies, 1,848 base-lines, and 2,006 follow-ups were registered. 61% of thepatients were male, and mean age by the time of the first reg-istered amputation was 74 years (SD 14). Women were older,more frequently had vascular disease without diabetes andmore often underwent amputation at a higher level comparedwith men (p < 0.001). Time from amputation to fitting offirst individual prosthesis was median 69 days (6–500) aftertranstibial amputation (TTA) and 97 days (19–484) aftertransfemoral amputation (TFA). The outcomes were lowerafter TFA than after TTA.Interpretation — SwedeAmp shows sex differencesconcerning amputation level, diagnosis, and age, leadingto the conclusion that women have worse preconditions forsuccessful prosthetic mobility after LLA. With increasingcoverage, SwedeAmp can provide deeper knowledge withregard to patients undergoing LLA in Sweden.