The Ariane-IPF ERS Clinical Research Collaboration: seeking collaboration through launch of a federation of European registries on idiopathic pulmonary fibrosis

摘要

Idiopathic pulmonary fibrosis (IPF) is the most prevalent of rare pulmonary diseases [1], and the most severe of the chronic forms of idiopathic interstitial pneumonias, with rising incidence and prevalence [2–4]. The prognosis for people diagnosed with IPF is a median survival of 3–3.5?years [1].Ariane-IPF is a project aimed at creating a federation of European registries for idiopathic pulmonary fibrosis, supported by an ERS Clinical Research Collaboration http://bit.ly/2J325tbWe thank Celine Genton and Elise Heuvelin from the European Respiratory Society (Lausanne, Switzerland) for their help and support and for managing the survey.