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Alzheimer's disease and stigmatization

机译:阿尔茨海默氏病和耻辱感

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Aim: The main objective of the study was to explore social bias experienced by patients with Alzheimer's disease and to investigate the knowledge of a sample of the general population regarding this particular disease. Method: The sample consisted of 91 individuals who were first degree relatives of members of three Centers of Open Protection for the Elderly, who did not suffer from dementia as they have recently undergone screening for Alzheimer's disease. A survey design was adopted using a face-to-face questionnaire which apart from the demographical data and two open-ended questions, was based on a 5-point lickert scale, looking at knowledge, attitudes and stigma towards the disease. Data was analyzed through SPSS software using descriptive statistics while results were regarded significant at p<0,05 level of significance Results: For the quantitave questions, cronbach's a was a=0,75 and the average discrete index 0,31. Stigma was explored through a series of direct and in-direct questions and while 70 (77%) persons distinguish dementia from mental illness, 9(9,9%) people did not answer these questions. The majority (62,6%) did not stigmatize the patient as 57 persons said that the patient is not to blame for the disease. Conclusions: from the distribution of results it becomes evident that there is a need for education, training and multifaceted enlightenment of the general population on issues concerning mental health. Answers that implied tendencies of marginalization of patients with dementia emanated mainly came from individuals in the sample with limited knowledge of the illness and relatively low educational background.
机译:目的:该研究的主要目的是探讨阿尔茨海默氏病患者所遭受的社会偏见,并调查有关该特定疾病的一般人群样本的知识。方法:样本由91个个体组成,这些个体是三个老年人开放保护中心成员的一级亲属,他们没有患痴呆症,因为他们最近接受了阿尔茨海默氏病的筛查。采用了面对面调查表的调查设计,该调查表除了人口统计数据和两个开放性问题之外,还基于5点利克特量表,着眼于对该疾病的知识,态度和污名。通过SPSS软件使用描述性统计数据分析数据,而结果被认为在p <0.05显着性水平上具有显着性。结果:对于量化问题,cronbach a为a = 0.75,平均离散指数为0.31。通过一系列直接和间接问题探讨了耻辱感,尽管有70(77%)人将痴呆症与精神疾病区分开,但有9(9,9%)人没有回答这些问题。大多数人(62.6%)没有给患者以耻辱,因为有57个人说患者不应该为疾病负责。结论:从结果的分布可以明显看出,需要对有关心理健康问题的普通民众进行教育,培训和多方面的启发。隐含散发性痴呆患者边缘化倾向的答案主要来自对疾病知识有限且教育背景相对较低的个体。

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