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The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?

机译:第十届牛津剑桥大学大学医学伦理学辩论会-我们应该担心直接面向消费者的基因检测的兴起吗?

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In an increasingly data-driven age of medicine, do companies that offer genetic testing directly to patients represent an important part of personalising care, or a dangerous threat to privacy? Should we celebrate this new mechanism of patient involvement, or fear its implications? The Universities of Oxford and Cambridge addressed these issues in the 10th annual Medical Ethics Varsity Debate, through the motion: “This House Regrets the Rise of Direct-to-Consumer Genetic Testing”. This article summarises and extends key arguments made in the debate, exploring the impacts of such genetic testing on both the individual patient and broader society, with special consideration as to whether companies can ever truly guarantee anonymity of genetic data.
机译:在日益数据驱动的医学时代,直接为患者提供基因检测的公司是否代表了个性化护理的重要组成部分,还是对隐私的危险威胁?我们应该庆祝这种新的患者参与机制,还是担心其影响?牛津大学和剑桥大学在第十届年度医学伦理大学辩论中通过以下议案解决了这些问题:“该院对直接面向消费者的基因检测的兴起感到遗憾”。本文总结并扩展了辩论中提出的主要论点,探讨了这种基因检测对个人患者和整个社会的影响,并特别考虑了公司是否能够真正保证基因数据的匿名性。

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