Healthcare pathway and patients' expectations in pulmonary fibrosis

摘要

In a survey of European idiopathic pulmonary fibrosis (IPF) patient advocacy groups, Bonella et al. [1] highlighted inequalities in IPF care across Europe. The European IPF patient charter summarises patients' priorities and underscores the frequency of misdiagnosis, of delayed referral to excellence centres, and the need for education of general physicians and pulmonologists about IPF.Patients with pulmonary fibrosis want earlier referral to excellence centres and an improved network of care http://ow.ly/pidy30abNoH